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RUSSIAN MULTIPLE SCLEROSIS SOCIETY

Ethics and trust: doctor–patient dialogue discussed in Perm

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Summing up WMSD in Russia

Summing up WMSD in Russia

This period of about two weeks, which we dedicate to our fight with MS most fervently, is over by now. It started on World MS Day and ended on the 11th of June, when the All-Russian MS Day is celebrated. In our country like throughout the world, we marked WMSD, by many estimates, just wonderfully. A long list of events ARMSS branches implemented on WMSD proves that.

MSIF about WMSD in Russia

MSIF about WMSD in Russia

MSIF about WMSD in Russia This year World MS Day (WMSD) was very convincing and more than remarkable. It was a hit for all countries around the world. But it came as a surprise when summarizing the WMSD 2012 results, the MSIF office wanted to feature the events taken place on WMSD in Russia . Perhaps, that interest proceeded from the popularity WMSD had gained…

Consultative Status with the ECOSOC

Consultative Status with the ECOSOC

Since the Committee on Non-Governmental Organizations recommended the Economic and Social Council (ECOSOC), UN, to grant Special Consultative Status for the All-Russian MS Society at the beginning of this year in New-York, which President Yan Vlasov attended and spoke at, some 6 months have passed. Yet, the long-awaited news could not reach us sooner.

Russian patient forum

Russian patient forum

On 21-23 November 2012, the city of Khanty-Mansiysk hosted the All-Russian Patient Forum ‘Towards a Healthy Country’, which was organized by the All-Russian Patients Union with the support of the Plenipotentiary President’s Representative in the Ural Federal District and the government of the Khanty-Mansiysk Autonomous Area – Yugra.

Meteorite comes timely but hardly twice

Meteorite comes timely but hardly twice

No wonder, meteor strikes shake areas of Earth both uninhabited and inhabited by different people including those with MS. This time, I was there and then as I reside in the town of Chebarkul 80 km (48 miles) west of Chelyabinsk (a big industrial city with over million inhabitants), the Urals region, Russia.

Open letter to the Chairman of the Government

Open letter to the Chairman of the Government

download (pdf) Dear Mister Dmitry Medvedev! The patient community voices their concern and incomprehension as for the changes introduced by the Russian Health Ministry as the last amendments to Federal Law #61 “About pharmaceuticals turnover.”

Svetlana Goronkova Is the Wolfensohn 2013 Award Winner

Svetlana Goronkova Is the Wolfensohn 2013 Award Winner

“We should have nominated Svetlana in previous years”, someone suggested as we drew up Svetlana Goronkova’s nomination to submit to the James D. Wolfensohn Award 2013 for International Person with MS. Now, Svetlana, Samara MS society director, has won it. But perhaps it was premature to put her forward earlier since we would have lacked one of her significant achievements which considerably contributed to Svetlana’s…

WMSD in Russia

WMSD in Russia

In fact, WMSD is still going on in Russia. We have acquired a good tradition to start the MS event on the last Wednesday in May with WMSD, and the All-Russian MS Day on 11 June will see the end of MS functions during this special period of the year when we highlight MS issues together with the globe.

Our statement in ECOSOC, UN

Our statement in ECOSOC, UN

It has been almost two years since ARMSS was granted with the consultative status in ECOSOC (Economic and Social Council), UN. During this time, we have already participated in a competition, organized by the UN, shared experiences and opinions and even made working visits to each other. However, the time has come for us to exercise our right of the ECOSOC consultative status and make…

PROGRAMME 4 RUSSIAN CONGRESS OF PATIENTS (25-26 November, 2013, Moscow, Russia)

PROGRAMME 4 RUSSIAN CONGRESS OF PATIENTS (25-26 November, 2013, Moscow, Russia)

PROGRAMME

Information message

Information message

This is to announce that the All-Russian Union of Patients will hold the 4th All-Russian Congress of Patients in Moscow. The Congress aims at developing and translating mechanisms for the Government and NGOs to cooperate in order to improve the quality of life of Russian citizens.

Krasnoyarsk school of plenipotentiary public expert

Krasnoyarsk school of plenipotentiary public expert

The city of Krasnoyarsk was a venue for a training seminar of the All-Russian MS Society dedicated to issues associated with multiple sclerosis

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RuMSS

Russian Multiple Sclerosis Society

Supporting people with MS and their families.