Recent news about worsening conditions for people with MS in Moscow to get treatment has alarmed the international community. We are grateful to our friends who were moved to extend their helping hand in the situation and offered their support. However, the Russian MS Society has a huge experience in settling issues, and this one in Moscow proved resolvable, too.

 

Our Organisation (original name: All-Russian Public Organization of Disabled People with Multiple Sclerosis) has changed its former abbreviation ‘ARMSS’ to acquire the acronym ‘RuMSS’.

This is the short form of the Russian Multiple Sclerosis Society, i.e. the name for our Organisation, which is best acceptable overseas.

25th November, 2014. Moscow. The 5th Russian Congress of Patients took place at News Agency «Russia Today» gathering representatives of NGOs from almost every Russian region.

Greeting participants, representatives of relevant ministries would emphasise significance of a productive dialog with patient associations.

WHO representative in the Russian Federation Elena Yurasova reminded that since 2002 patients’ protection became a worldwide healthcare problem.

 

On the 7-11 of July, the 2014 Annual Ministerial Review was convened in New York as part of the ECOSOC High-level Segment, UN. On the first day, attendees heard a statement, prepared by President of the Russian MS Society (RuMSS) Dr. Yan Vlasov that suggests initiating under the auspices of the UN a discussion platform between NGOs in the ECOSOC consultative status from all over the world to discuss the RuMSS’ initiative of establishing public control in healthcare.

It is our pleasure you have opened the English language web-site of the Russian Multiple Sclerosis Society (RuMSS).

At this web-site, we intend to create an information window for those, who find contents in English easier to follow than in Russian. We want to make our English-speaking visitors and stakeholders feel comfortable here as much as possible through a friendlier way of presenting information.

I put much trust you will enjoy navigating here and find this resource informative!

Dr Yan Vlasov
President, RuMSS

 

 

Our congratulations go to all colleagues who take part in providing content for the Information Space System of the All-Russian MS Society, on a top place award of the All-Russian Website Competition ‘Positive Content-2010’ within the framework of ‘RUNET 2010 Awards’ (RUNET is Russia’s biggest Internet provider). The All-Russian MS Society’s website became the prize-winner in the special nomination of the Russian Agency for Society Information Development (RARIO) ‘The best website to develop voluntary initiatives’. We thank all for their work and contribution in this victory!

Since the Committee on Non-Governmental Organizations recommended the Economic and Social Council (ECOSOC), UN, to grant Special Consultative Status for the All-Russian MS Society at the beginning of this year in New-York, which President Yan Vlasov attended and spoke at, some 6 months have passed. Yet, the long-awaited news could not reach us sooner.

It has been almost two years since ARMSS was granted with the consultative status in ECOSOC (Economic and Social Council), UN. During this time, we have already participated in a competition, organized by the UN, shared experiences and opinions and even made working visits to each other. However, the time has come for us to exercise our right of the ECOSOC consultative status and make a change in the work of this UN structure, which has been done by ARMSS President, Yan Vlasov.

In Samara, a new centre of rehabilitation for the families of people with MS has just opened. Many of these people cannot get about without someone helping them. They use wheelchairs, and it results in social restrictions. The centre will be the place for them to do exercise therapy, Yoga, conduct practical training lessons. While the disease being talked about, parents need to be parents. ‘My family lives to the fullest’, says Yelena Anufrieva.

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