This big event aimed at highlighting issues raised by various communities, both professional and patient, and seeking efficient inter-sector collaboration based on mutual understanding. To this end, 8 key events of different aspects were held including the 3rd Congress of the All-Russian Multiple Sclerosis Society (ARMSS): Reporting back and re-election.
In late May 2011, our Society started applying for general consultative status with the Economic and Social Council (ECOSOC) at the UN. By about mid-October before the ARMSS 3rd Congress in Samara, that process finished and the Committee was expected to invite the ARMSS, as due, to its 2012 Regular Session on 30 January – 8 February 2012 in New York to consider our application…
The ARMSS President Council and Board of Directors express their big thanks to the Central TV channel ‘Perviy’ (First) for the TV programme ‘Zhit’ zdorovo’ (Eng., ‘Live healthily’) aired at the end of May, 2012. The TV programme was transmitted shortly before the World MS Day, and it was dedicated to the event as well as to its theme of informing wide audiences about MS…
This period of about two weeks, which we dedicate to our fight with MS most fervently, is over by now. It started on World MS Day and ended on the 11th of June, when the All-Russian MS Day is celebrated. In our country like throughout the world, we marked WMSD, by many estimates, just wonderfully. A long list of events ARMSS branches implemented on WMSD proves that.
MSIF about WMSD in Russia This year World MS Day (WMSD) was very convincing and more than remarkable. It was a hit for all countries around the world. But it came as a surprise when summarizing the WMSD 2012 results, the MSIF office wanted to feature the events taken place on WMSD in Russia . Perhaps, that interest proceeded from the popularity WMSD had gained…
On 21-23 November 2012, the city of Khanty-Mansiysk hosted the All-Russian Patient Forum ‘Towards a Healthy Country’, which was organized by the All-Russian Patients Union with the support of the Plenipotentiary President’s Representative in the Ural Federal District and the government of the Khanty-Mansiysk Autonomous Area – Yugra.
No wonder, meteor strikes shake areas of Earth both uninhabited and inhabited by different people including those with MS. This time, I was there and then as I reside in the town of Chebarkul 80 km (48 miles) west of Chelyabinsk (a big industrial city with over million inhabitants), the Urals region, Russia.
download (pdf) Dear Mister Dmitry Medvedev! The patient community voices their concern and incomprehension as for the changes introduced by the Russian Health Ministry as the last amendments to Federal Law #61 “About pharmaceuticals turnover.”
“We should have nominated Svetlana in previous years”, someone suggested as we drew up Svetlana Goronkova’s nomination to submit to the James D. Wolfensohn Award 2013 for International Person with MS. Now, Svetlana, Samara MS society director, has won it. But perhaps it was premature to put her forward earlier since we would have lacked one of her significant achievements which considerably contributed to Svetlana’s…
Read more: Svetlana Goronkova Is the Wolfensohn 2013 Award Winner
In fact, WMSD is still going on in Russia. We have acquired a good tradition to start the MS event on the last Wednesday in May with WMSD, and the All-Russian MS Day on 11 June will see the end of MS functions during this special period of the year when we highlight MS issues together with the globe.
It has been almost two years since ARMSS was granted with the consultative status in ECOSOC (Economic and Social Council), UN. During this time, we have already participated in a competition, organized by the UN, shared experiences and opinions and even made working visits to each other. However, the time has come for us to exercise our right of the ECOSOC consultative status and make…
Russian Multiple Sclerosis Society
Supporting people with MS and their families.